Hubris.

I disagree with Great Ormond Street. If a family want to try alternative therapy and there is no evidence based treatment, or no cure, they should be allowed to do so.

To assume that we, as medicos, have a monopoly on cure is arrogance. It is hubris. We are not God, and we are not the parents of the children involved.

Charlie Gard is a 10-month-old baby who suffers from a rare genetic disorder called mitochondrial DNA depletion syndrome. It’s a horrendous condition that leads to organ malfunction, brain damage, and other symptoms. The hospital that had been treating the boy, Great Ormond Street Hospital for Children in London, made the determination that nothing more can be done for him and he must be taken off of life support. He should “die with dignity,” they said. The parents, Chris Gard and Connie Yates, disagreed.

This is the very crucial thing to understand: they are not insisting that GOSH be forced to keep Charlie on life support. Rather, they want to take him out of the hospital and to America to undergo a form of experimental therapy that a doctor here had already agreed to administer. Chris and Connie raised over $1.6 million to fund this last ditch effort to save their child’s life. All they needed the British hospital to do was release their child into their care, which doesn’t seem like a terribly burdensome request. They would then leave the country and try their luck with treatment here. However slim the chance of success may have been, it was better than just sitting by and watching their baby die.

Here’s where things get truly insane and barbaric. The hospital refused to give Charlie back to his parents. The matter ended up in the courts, and, finally, in the last several hours, the European Court of “Human Rights” ruled that the parents should be barred from taking their son to the United States for treatment. According to the “human rights” court, it is Charlie’s human right that he expire in his hospital bed in London. The parents are not allowed to try and save his life. It is “in his best interest” to simply die, they ruled.

In Europe, “Death with dignity” supersedes all other rights.

In Europe, a mother may kill her baby but she is not allowed to keep him alive.

The European Court of Human Rights functions as a death panel. Unsurprising: it has approved euthanasia laws.

It will not last: the European Union is falling and with it the structure of bioethicists that consider process more important than right behaviour. Sophism has never led to stable governance, or a righteous nation.

But for this they will be accountable. Do not be them. Do not be like them.

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