I am going to take this somewhere ugly, so if you don’t want to consider disability and pain and exhaustion then kindly go elsewhere. If you think that euthanasia is a solution, that some lives are not worth living, then you are either an Nazi or progressive (but I repeat myself) and damned.
And if don’t think that being disabled is hell for those who care, you have not walked with enough people with such problems. I have, and that is why I refuse to detail my health issues to employers: I may be visually impaired but I have glasses. I may have illnesses but I cleaned 50 kg yesterday. I am not disabled. Those who are need our care and patience and help.
And those who care for them need our prayers.
No, this isn’t from one conversation … just a compilation over time. Yes, I’m tired. A lot. No, I don’t have answers. No, there isn’t a cure. Yes, it’s permanent. Yes, some days her brain works, and some days it doesn’t. No, I can’t answer why. Yes, we’ve tried many things; actually, we’re constantly trying things. But trying things takes time, a lot of time, because it’s trial and error … and because there are many factors that go into each thing we try. No, I don’t think my whole house will ever be clean at the same time ever again. No, I can’t yet work outside the home. No, there isn’t anyone else who can keep her. Her dad did for awhile, but only on his scheduled weekends … but then he didn’t like her behavior anymore so he stopped, and now he’s dead. My Husband works two jobs to take care of us. No one else has taken the time to get to know her well enough to keep her to give me a break. Because it’s hard. Really, really hard. And people have their own lives. Yes her diagnoses are legit. Yes it’s hard. Yes, I’m tired. A lot. Yes, I am so very grateful God chose me to be her Mommy … cause I know she is loved and very well cared for and protected. I deeply love her.
What is the purpose of this? Why do goog women go to bed weeping because their kids have driven them crazy this morning? I’m not here arguing about the over diagnosis of such: that exists. I am discussing the issues these kids do have. IT is horrible if you are kid and you don’t fit in, and many of the so-called caring institutions make things worse.
And the answer is in this passage. It i beautiful. These things happen so God can be glorified.
As he passed by, he saw a man blind from birth. And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him. We must work the works of him who sent me while it is day; night is coming, when no one can work. As long as I am in the world, I am the light of the world.” Having said these things, he spit on the ground and made mud with the saliva. Then he anointed the man’s eyes with the mud and said to him, “Go, wash in the pool of Siloam” (which means Sent). So he went and washed and came back seeing.
The neighbors and those who had seen him before as a beggar were saying, “Is this not the man who used to sit and beg?” Some said, “It is he.” Others said, “No, but he is like him.” He kept saying, “I am the man.” So they said to him, “Then how were your eyes opened?” He answered, “The man called Jesus made mud and anointed my eyes and said to me, ‘Go to Siloam and wash.’ So I went and washed and received my sight.” They said to him, “Where is he?” He said, “I do not know.”
They brought to the Pharisees the man who had formerly been blind. Now it was a Sabbath day when Jesus made the mud and opened his eyes. So the Pharisees again asked him how he had received his sight. And he said to them, “He put mud on my eyes, and I washed, and I see.” Some of the Pharisees said, “This man is not from God, for he does not keep the Sabbath.” But others said, “How can a man who is a sinner do such signs?” And there was a division among them. So they said again to the blind man, “What do you say about him, since he has opened your eyes?” He said, “He is a prophet.”
(John 9:1-17 ESV)
I’ve talked enough about the Pharisees and their quibbling about God. Let’s consider Christ’s answer. This man was blind because God was glorified by his healing. The care we give for our most frail and broken members of our families glorifies God. No person is without worth. No person should be without love.
The love of this mother glorified God. The patience of her husband, who works equally long hours, glorified God. The sensitivities these people can have allow us to understand things that normies will miss.
It would be wrong to call this all a gift. There is too much pain here. But we forget that it is in our sacrifice for others that God is glorified, and not in our smugness.
And let us pray for such. Society would sweep them away, and make the world neat.
But such a world would be monstrous. Let it not happen.
your words make me cry in the deepest parts of my soul.
thank you.
i had not thought of the blind man in this story from a mother’s pov before, but it is so fitting. we’re given these snapshots in time, but there’s a story behind them … a mother who birthed him, a family, learning to adapt. i wonder if his mother was still alive to experience her son being able to see? if she was alive to know that there was purpose to her son being born blind?
again … thank you.